Carepartner Resources
A curated collection of resources for caregivers, families, and those navigating the journey of caring for a loved one.
Websites
- CurePSPThe leading organization dedicated to research, education, and support for Progressive Supranuclear Palsy (PSP) and related brain diseases.
- Parkinson's ResourcesProvides education, support, and resources to people living with Parkinson's disease and their caregivers in the Pacific Northwest.
- Davis Phinney FoundationOffers information on PSP as part of its broader mission to help people with Parkinson's and related conditions live well today.
- Michael J. Fox Foundation: Atypical ParkinsonismAn overview of atypical Parkinsonism conditions including PSP, from one of the world's foremost Parkinson's research foundations.
- Alzheimer's AssociationThe world's leading voluntary health organization in Alzheimer's care, support, and research — with a 24/7 helpline for families.
- National Institute on AgingA federal resource offering research-based information on health, aging, and caregiving from the National Institutes of Health.
- ACL / Eldercare LocatorA nationwide service that connects older adults and caregivers to local support services, including transportation, meals, and in-home care.
- National Long-Term Care Ombudsman Resource CenterAdvocates for residents of nursing homes and assisted living facilities, helping families navigate long-term care concerns and complaints.
- National Plan to End Parkinson'sA coordinated federal initiative to accelerate research and improve care for people living with Parkinson's disease and related conditions.
- AARP / Caregiver ResourcesPractical tools, guides, and community support for family caregivers — covering everything from daily care to financial and legal planning.
- Caregiver Action NetworkA nonprofit organization that empowers family caregivers through education, peer support, and advocacy at the national level.
- Senior Care Resources (Home Instead)Articles, guides, and tools to help family caregivers manage stress, plan for care, and support aging loved ones at home.
- CarePatrol – Your Partner in Senior Care Advisory ServicesA free senior placement service that helps families find the right assisted living, memory care, or in-home care options in their area.
- Powerful Tools for CaregiversAn evidence-based education program that gives family caregivers the tools to take care of themselves while caring for a loved one.
- Aging Care Caregiver ForumAn online community where caregivers share experiences, ask questions, and find emotional support from others on the same journey.
- AARP Family Caregiving InformationIn-depth resources on caregiving topics including dementia care, long-distance caregiving, financial planning, and caregiver self-care.
- Rose Elder Law – Events & Free SeminarsFree educational seminars on elder law topics such as estate planning, Medicaid, and protecting assets for aging loved ones.
- Five WishesA widely used advance directive document that helps individuals and families express their wishes for medical care and personal comfort.
- EOLCOR – End of Life Choices OregonAn Oregon-based organization that educates and supports individuals seeking information about end-of-life options and medical aid in dying.
- Death With DignityAdvocates for the right of terminally ill individuals to choose how and when they die, with information on laws and options across the U.S.
- Aging Life Care AssociationA professional organization for Aging Life Care Managers — specialists who help families navigate elder care decisions, coordinate services, and advocate for older adults.
- Grief & Loss Support Groups (GriefShare)A network of grief support groups meeting across the country, offering community and guidance for those who have lost a loved one.
- NestRight Senior Living AdvisorsAn Oregon-based, free senior living advisory service that helps families find the right care options — from independent living to memory care — with personalized, compassionate guidance.
Books
- The Art of Dying WellKaty ButlerA practical, compassionate guide to navigating the end of life — covering medical decisions, hospice, and how to die on your own terms.
- The Gift of Caring – Saving Our Parents and Ourselves from the Perils of Modern HealthcareMarcy Cottrell Houle, MS and Elizabeth Eckstrom, MD, MPH, MACPA geriatrician and a caregiver daughter team up to show families how to advocate effectively within a complex healthcare system.
- The Dementia HandbookJudy CornishReframes dementia care through the lens of preserved intuitive abilities, offering caregivers a gentler, more effective approach to daily life.
- Dementia Facts & InformationFredrick EarlsteinA concise, accessible overview of dementia types, symptoms, stages, and care strategies for families seeking foundational knowledge.
- Beating the Dementia MonsterDavid H. Brown and Vaishali S. Phatak, PhD.A first-person account of living with early-onset Alzheimer's, paired with research-backed strategies for slowing cognitive decline.
- Last Dance at the Savoy: Life, Love and Caregiving for Someone with Progressive Supranuclear PalsyKathryn Leigh ScottA deeply personal memoir about caring for a husband with PSP — capturing the love, grief, and resilience at the heart of the caregiving journey.
- Being Well with Chronic IllnessKat Hill & Nancy PeateA supportive guide for those living with long-term illness, offering practical tools for managing symptoms, emotions, and everyday wellbeing.